Being Diagnosed with Type 1 Diabetes

Lets start with some back story. Before I was diagnosed I went through a grueling 2 months of what felt like hell. The first symptom I had was a foamy urine. At first I was not sure if it was the diet I recently changed to, and I was having some kind of side affect from some vitamin being low, or if I had something more serious. Since I had not blood in my urine, or pain while urinating I figured vitamin, and started taking a multi-vitamin. A few days later I got what was like a stomach bug, which eventually turned into cold, and then flu like symptoms. I for one, and sure that many of us are guilty of trying to let our body fight it off before we go into urgent care, the emergency room, or our doctor to spend a bunch of money to get some kind of medication to speed up the process. So I waited it out, and I started to get better. But that foamy urine was still there. At this point I was a month and a half in, but I felt good. This good feeling lasted about 1 week, then all the symptoms came back. The last 3 days before I had my neighbor take me to Urgent Care, then to be kicked out and sent to the Emergency Room where the worst. I had absolutely no energy. I could barely walk 20 feet without being absolutely winded. Just picking my self up took every ounce of strength I had. I lost somewhere around 15 to 20 pounds during those 3 days just laying in bed in agony trying to get better. The final symptom that made me want to go to the hospital was my heart, and breathing. I woke up in the middle of the night with my heart racing, and beating so fast it was practically beating right out of my chest, on top of breathing really heavily. When I got to the ER (Emergency Room) at St.Mary's hospital, I was in a state of DKA (Diabetic ketoacidosis). For those that don't know what that is:

Diabetic ketoacidosis (DKA) is a serious condition that can lead to diabetic coma (passing out for a long time) or even death.When your cells don't get the glucose they need for energy, your body begins to burn fat for energy, which produces ketones. Ketones are chemicals that the body creates when it breaks down fat to use for energy. The body does this when it doesn’t have enough insulin to use glucose, the body’s normal source of energy. When ketones build up in the blood, they make it more acidic. They are a warning sign that your diabetes is out of control or that you are getting sick.

- See more at the (American Diabetes Association) Website (5/16/2016): http://www.diabetes.org/living-with-diabetes/compl...

My blood glucose (sugar) was at 533 upon being admitted to the ICU (Intensive Care Unit) with a diagnoses of Type 1 Diabetes, and being in a state of serious DKA. For those that are asking what Type 1 Diabetes is:

Type 1 diabetes (T1D) is an autoimmune disease in which a person’s pancreas stops producing insulin, a hormone people need to get energy from food. T1D occurs in both children and adults and has nothing to do with diet or lifestyle. There is currently nothing you can do to prevent it.People with T1D must monitor their blood-sugar level 4-6 times per day, inject multiple times a day or receive insulin continuously through a pump, and carefully balance their insulin doses with eating and daily activities throughout the day and night. However, insulin is not a cure for diabetes. Even with intensive disease management, a significant portion of their day is still spent with high or low blood-sugar levels, placing people with T1D at risk for devastating complications such as heart attack, stroke, blindness, kidney disease and amputation.

- From the JDRF Website (5/16/2016): http://typeonenation.org/resources/general-t1d-inf...

As the news was broke to me by the doctor assigned, my heart sunk. I was not sure what to think. I felt like I was handed a death sentence in a way. After thinking about it my first night in ICU, I decided I was not going to let this disease stop me. Yes, I am going to have to radically change my approach of how I manage my life, diet, and hobbies. But I was going to refuse this disease from taking away everything I love to do. I soaked up everything the Diabetes Education assigned to me was teaching me. Upon being discharged 3 days later with my blood glucose still elevated, I attended a Diabetes class the hospital ran every Thursday evening. I made it my goal to change my life that night. Some of my benefits where that I never drank that much. I've never smoked, never done drugs, and never planned on starting either or becoming a heavy drinker. I'm now going onto my 2nd week of having, and managing Type 1 Diabetes and can say that my 14 day average blood glucose level is down to 108 with my Low Carb diet, and careful management of my blood glucose levels. Even my Endocrinologist was amazed how fast I was able to get a grasp of managing my Diabetes.

I owe part of that to my Diabetes Educator, but also the ADA (American Diabetes Association), and the JDRF (Juvenile Diabetes Research Foundation's) websites, and online communities. Both of which will be linked in the bottom of this post with useful links for new Type 1 Diabetics.

I've decided with my Endocrinologists approval to start some of my more physically intensive hobbies like Dirt Biking, riding Quads, and Cycling with moderation to see how it affects my glucose levels so I can adjust accordingly. I'll be going out for the first time since being diagnosed tomorrow morning, expect another blog, and GoPro footage of that ride.

For those interested I am on a MDI (Manual Daily Injections) management plan. I've decided I am not ready for a pump yet, and my current insurance does not cover a CGM (Continuous Glucose Monitor). So I use multiple daily finger pricks to check glucose levels. The insulin I am on is a Long Acting/Rapid Acting. Lantus, and Novolog. Current dosages are 25units of Lantus in the morning, and 5 units + sliding scale of Novolog via Flexpen at each meal.


Resources:

Useful Links for new Type 1 Diabetics:




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